Friday, February 26, 2010
Thursday, February 25, 2010
So, what have I learned this week? Well, not only are Jonalyn's femurs turned, and thus everything else down the leg, but the back bone in her heel is curved. This causes her arches to collapse, causing her to walk on the inside of her foot, which isn't very stable. The PT is recommending that Jonalyn get orthodics for her shoes, and possibly a small brace for her ankles to give her stability. Her hip muscles and some of the muscles in her feet are very weak. They've been working on strengthening exercises for her and have given some exercises for us to work on at home.
I love this therapy place. The therapists are wonderful and relate very well to Jonalyn. She doesn't want to leave because she's having so much fun. The therapist we had yesterday sat with me for 30 minutes, explaining everything to me in detail. I finally understand what's going on. I also learned that we won't do both strapping and taping, but one or the other. With the strapping, she'll need to wear shorts or a belt to anchor the straps. This will interfere with going to the restroom. With the tape, we'll need to make sure she doesn't peel it off and we'll have to change it every few days. So now we have to decide which we are going to do. None of this is guaranteed to move her bones. Because she is 7 1/2, her bones aren't as pliable as a younger child's and may well not move. But it's worth a try since our only other option is surgery. I'm all for giving the least invasive procedure a chance!
So that's where we stand right now. We have three weeks of therapy left. Three weeks of running around, getting kids where they need to go when they need to be there, three weeks of trying to cook healthy meals even though I'm not home! And to top it all off, Brian's retainer broke, so we need to run to the orthodontist today. So much for grocery shopping!
Tuesday, February 23, 2010
Anyway, you all don't want to hear about that. I have so much on my heart and mind, but I can't share any of it publicly. If you would, please say a prayer for our family.
Jonalyn starts therapy this afternoon. Our life will be crazy for the next month, but I think if we all pitch in we can survive this season. It is so important to get her legs straightened out.
I'll have some pictures to share one of these days, but we went to the Museum of Sci*nce and Industry in Chicago on Friday. Brian wasn't happy about having to get up early on a day off, but we ended up having a very nice time. Alyssa especially enjoyed the exhibits and the hands-on things they had for her to do. Even Jonalyn got into the act, though she didn't understand what she was doing or why. She loved the big train and the airplane hanging from the ceiling. We also got to try out her large size stroller - it worked great! It folds and unfolds just like an umbrella stroller, but it's much sturdier. It's also a breeze to push, which Alyssa did most of the day.
And that's about all the rambling I'll do for today.
Friday, February 19, 2010
Thursday, February 18, 2010
Today I am thankful for sunshine. Seems silly, I know, but it is really important. And if you've ever survived a northern winter, you'll know how we rejoice over sunshine. The sky is perfectly blue today. Right now I don't even see a jet contrail marring it's unbroken surface. The light is reflecting off of the snow, so brightly you can't look at it for long without being temporarily blinded. February sun is much stronger than December sun. It really makes a difference in the temperature of your car and your home. The dog and the cat sleep in the weirdest places, just so they can be in that one little spot of sun on the floor. Sometimes I'll stand at the window for a while, not doing anything, soaking up as much vitamin D as I possibly can. And a February sun hints at the wonderful promise of coming spring.
God is good. God is gracious. God is faithful. He sends us the sun.
Now I'm going to move into that sliver of light slanting across the recliner.
Wednesday, February 17, 2010
I LOVED the clinic. It is devoted just to therapy and looks like they specialize in kids. There are a ton of therapy rooms. We were in the small gym, with lots of gait trainers and even a treadmill in front of a mirror. Jonalyn wanted to climb on that. They also have a big gym with steps and slides and a ball pit. The neatest thing, though, was the trampoline. Jonalyn and the therapist walked across the floor. I noticed the color changed from green to gray but didn't think anything of it until the therapist told Jonalyn to jump. It was a tramp. Right in the floor! I want one of those in our house!!
Our lives are about to get much busier, but Jonalyn needs to be able to walk without falling, so this is important. And if the strapping and taping don't work, she'll need some pretty major surgery and we'd like to avoid that if at all possible. Pray with us that she'll soon but walking better and safer.
Friday, February 12, 2010
Thursday, February 11, 2010
Monday, February 8, 2010
FOR TODAY February 8, 2010
Outside my window...light snow falling. It had been the powdered sugar kind, but now it's big flakes. A big storm is expected tonight and tomorrow. 10-14". Let's hope so!
I am thinking...about how fast I have to type to get this done before I have to leave!
I am thankful for...a wonderful weekend. More about that in a later post.
From the learning rooms...Alyssa has an art class this morning. Not sure when we'll fit in some school. It looks like it's going to be one of those weeks.
From the kitchen...shrimp spaghetti. It's quick and easy, only a few ingredients, but really good.
I am creating...lots of scrapbook pages. Getting ready for an all-day crop party in March.
I am wearing...jeans, a white turtleneck, a purple sweater, my slippers, but no afghan today.
I am reading...Beneath a Harvest Sky by Tracie Peterson. I'm trying to learn how to savor books, a chapter a night. We'll see how long that will last!
I am hoping...that the roads stay clear today but that we can't go anywhere tomorrow.
I am praying...for all my dear friends and the various trials they have in their lives.
I am going...to take Alyssa to art class in just a few minutes.
Around the house...quite messy because I wasn't home most of the weekend. If I don't go anywhere tomorrow, I'll have to tackle it.
I am hearing...the furnace, my computer humming.
One of my favorite things...a pretty snow. It looks so beautiful falling and so nice on the ground.
A few plans for the rest of the week: Jonalyn has an appointment at the CP clinic today for her turned-in feet, work, the Olympics start on Friday!!! (big party planned with Alyssa for the opening ceremonies.)
Here is picture thought I am sharing: The art museum in Milwaukee. We took this picture on our trip there on New Year's Eve. It's so beautiful. It's supposed to look like a sailing ship, perfect because it's right on the lake shore.
Friday, February 5, 2010
Trunk B*y, St. J*hn's, U.S. Virgin Islands. We went snorkeling here for the first time and were hooked. Pure paradise.
Shopping on the French side of St. M*rtin. A wee bit windy, but wonderful.
Well, these pictures aren't in order, but here are the kids swimming in Trunk B*y. Who's missing? She was still in the Philippines.
The kids' first time in the ocean on the Dutch side of St. Maart*n. The water was wonderful!
We stood in line for an hour to see the princesses. Mulan was Alyssa's favorite. She said, "She looks just like me!"
Chilling out on board. We spent lots of time just relaxing. Doug has a towel over his legs so he doesn't get sunburned. What a problem to have!
Ally dressed up for dinner! And the food was really good, too. Our wait staff was so attentive to us and learned what we liked. They did a great job with my dairy-free diet, even making me a special dessert on the last night because there was nothing else I could have. I ordered everything ahead of time so they could make it special for me. What service!
A character breakfast was included with our cruise. It was a great way to see all the characters without having to stand in line!
On Disn*y's private island, Cast*way Cay. The day started out chilly and cloudy, but once the sun came out, it was gorgeous. I had a massage on the ocean in the morning. Heaven.
At Cast*way Cay with out ship in the background. The boys went snorkeling here (the water was too cold for the girls - I think the water in the B*hama's is colder), bicycling (poor Alyssa pedaled with all her might, but she was a trooper and made it!) and played in the water. We also had a BBQ on the beach for lunch. Calg*n, take me there!
Thursday, February 4, 2010
Jonalyn had her IEP meeting last week. It went well and I think we're all on the same page, which is good. I hope she gets a good numbers of hours in with her special ed teacher. The aides she has do seem to be doing a good job with her. I like her therapists. Motivation is sometimes a problem with her, but for the most part she works hard and likes school, which is great. So she'll be in 1st grade next year. Most of her work will have to be modified since she is only operating at a 3 year old level. She'll have time with the special ed teacher, the OT and the speech therapist. We're waiting for our visit to the CP clinic next week to see if she'll need more PT. That's another post.
Now, switching gears completely - what were they thinking???!!! I'm talking about that group from the U.S. trying to get children out of Haiti illegally. It angers and saddens me no end. Haiti is closed to adoptions right now, with the exception of those who already had referrals. They are giving emergency refugee status to these kids now and getting them home. But everything else is closed. And I applaud the Haitian government for that. They need to be very, very careful about black market and under the table adoptions now. These idiots who tried an illegal method of getting the children out only hurt the chances for other orphans to get a good, loving home. If people continue to pull stunts like this, adoptions may be shut down for a long time. Maybe even permanently. Please, please, if you want to help Haiti's orphans, please, please do it legally. Don't jeopardize their chances at a having a family of their own.
Stepping down from my soap box now. That's my sermon for today ;) Told you these were random thoughts. But I'll stop here, let that sink in, and see if my internet is working enough for me to get this posted.
Monday, February 1, 2010
FOR TODAY February 1, 2010
Outside my window...cloudy, dreary, not terribly cold, not terribly warm. We're supposed to get a little bit of snow tonight. The swing set and the camper in the back yard look awfully lonely.
I am thinking...about how I'm going to get in some exercise this week. I might go for a swim this afternoon. I'll think about it.
I am thankful for...nothing eventful or monumental going on in my life right now.
From the learning rooms...it's pitiful, but we haven't started school yet this morning. Things keep getting in the way. And it's going to be a busy week with school squeezed into the few free moments.
From the kitchen...homemade perrogi. I love them. My mother talks about the ones my grandmother made. These are on the lighter side. And I promise to only have a few.
I am creating...chapter 13 in my book. Well, it's already created, but it needs to be edited. And boy, does it need to be edited. I have to move scenes around and try to get them to fit into my time line.
I am wearing...jeans, a white turtleneck, a red hoodie, and yes, again, my blue slippers with an afghan around my shoulders.
I am reading..."Bad Heiress Day" by Allie Pleiter. It's one I've wanted to read for a while. O.K., so I know I don't have time to read anything, but I gave into temptation at the library on Saturday.
I am hoping...my knee feels better so I can walk the dog. She's getting that restless, pent-up feeling everyone gets around here this time of year.
I am praying...for all of my children and for their spiritual conditions. More than anything else, I want them to love the Lord.
I am going...to the grocery story while Alyssa is at piano lessons. They have some good specials this week that I want to take advantage of.
Around the house...still pretty clean from the weekend. I need to make my bed, but otherwise it's not too bad. If only it could stay that way!
I am hearing...the furnace running. Always a good thing!
One of my favorite things...a good book. If only I could spend my days doing nothing but reading. And if it could be reading on a beach somewhere tropical with a glass of iced tea in my hand, that would be ideal!
A few plans for the rest of the week: I have a busy week in work getting out the annual report for church. Alyssa has her yearly check-up at the doctor on Thursday. Thursday night Doug & I are going out to dinner with friends of his from work and then to see a comedian. Friday is my dad's 75th birthday and we are taking him to Milwaukee to see the Dead Sea Scrolls at the public museum. I can't wait. Shhh, it's a secret. Busy, busy week but hopefully a fun one, too.
Here is picture thought I am sharing: My birthday a couple of weeks ago. This is my parent's house. And don't we all look thrilled!!